Working with your child’s health care team
Once your child is out of the ICU and in a regular hospital room, the nurse who looks after them regularly will also have other patients to care for, unlike the ICU. Because of this you will be encoraged to play a greater role in your child’s care.
At this point, too, other transplant team member, such as the physiotherapist, occupational therapist, and dietitian, become involved again in your child’s care. It is important that you and your child follow their recommendations and instructions so that your child can begin to experience life with their new kidney.
This is also a time when the transplant coordinators and pharmacists will work closely with you to make sure that you are getting ready to care for your child at home.
Caring for a child with a chronic illness and going through a transplant can be stressful for everyone and can affect family dynamics. It is important to consider how other siblings might feel and make time for spouses/partners. Many families find benefit from family-centered therapy. If this is something you feel might be helpful, your transplant team can help you identify sources of support.